Scoliosis Support & Research

A Scoliosis Journey by Vicky Wong

Vicky’s story is all too familiar– one of a chance diagnosis that led to a life altering series of events. The power to create positive awareness of scoliosis is what drives us. Speak up wherever and whenever you can. Never underestimate the difference you can make.

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2m+

UK people have scoliosis

1500+

SSR members supporting us

5000+

members of our Facebook Support Group

How we can help you

Seeing a scoliosis specialist as early as possible is really important.

Find a Specialist

Contact us to find your nearest specialist then take this information to your GP and ask for a referral.

Learn more

Back pain is a common problem, particularly if you’re affected by scoliosis.

Pain Management

If you are in pain, whether mild, moderate or severe, help is available to manage it.

Learn more

We will be organising various patient meetings around the country.

Patient Meetings

Information on what is happening, where and when will be on this page. Watch this space!

Learn More

We rely on the generosity of our supporters as we receive no government funding.

Fundraising

Without the support we receive from our fantastic fundraisers we would not be able to continue our work.

Learn More

We are proud to fund innovative research into scoliosis and other spinal conditions.

Research

If you are a researcher with an idea for a project, read about the grants we offer.

Learn More

Find a Specialist Seeing a scoliosis specialist as early as possible is really important.

Pain Management Back pain is a common problem, particularly if you’re affected by scoliosis.

Patient Meetings We will be organising various patient meetings around the country.

Fundraising We rely on the generosity of our supporters as we receive no government funding.

Research We are proud to fund innovative research into scoliosis and other spinal conditions.

Find a Specialist

Contact us to find your nearest specialist then take this information to your GP and ask for a referral.

Learn more

Pain Management

If you are in pain, whether mild, moderate or severe, help is available to manage it.

Learn more

Patient Meetings

Information on what is happening, where and when will be on this page. Watch this space!

Learn More

Fundraising

Without the support we receive from our fantastic fundraisers we would not be able to continue our work.

Learn More

Research

If you are a researcher with an idea for a project, read about the grants we offer.

Learn More

My condition was diagnosed in 1966 when I was 10 years old – curvature of the spine with rotation. At that time, the only available treatments were bone grafts or a torso plaster cast, with no guarantees of success.

Suzanne

I finally received my official diagnosis aged 50 and have since been told I have adolescent idiopathic scoliosis. Throughout my adult life I suffered from debilitating back pain without knowing why.

Liz

Overall, I think my experience has made me brave and resilient. It was hard at the time, but I don’t think about it very much at all anymore. I am lucky to feel normal and have such a good support system around me.

Matty

I was diagnosed with scoliosis at the age of 11 but it was left untreated for years as my referral to the hospital got lost, so I had to live with a deteriorating spine.

Ciara

Ten years ago, I faced a pivotal moment that has shaped my life – 11 hour major spinal surgery to correct scoliosis. I couldn’t think of a better way to celebrate this huge milestone by officially being able to say, I will be running the London Marathon 2024 for Scoliosis Support and Research.

Amy Matthews